Temple St. Children's Hospital, 9 November 2011
The implementation of the Informing Families in Temple St. Children's Hospital will be officially launched on 9 November 2011. Training will be provided by the Informing Families Project Coordinator (Alison Harnett) and parent and Chair of the Cork Pilot Project (Katherine O'Leary) to a range of staff members at an event to be hosted in the hospital.
Informing Families Training in Cherry Orchard Hospital, Dublin, 10 September 2010
10 September 2010
The Early Service Network is an informal group of staff from Dublin South West - both Statutory and Voluntary agencies that are involved in the provision of early services. They have kindly invited the Informing Families Project Coodinator to provide training in the National Best Practice Guidelines for Informing Families of their Child's Disability on Friday September 10th
in the Lecture Theatre, Cherry Orchard Hospital, Ballyfermot from 10am – 12.30pm.
If you wish to attend the training session please contact info@informingfamilies.ie or telephone 091 792316.
Directions: Lecture theatre situated in the main administration building Cherry Orchard hospital. Building is on the right hand side after coming through the gate.
Parking: Turn left after coming through the gates parking on the right or the left. Walk back to Administration building
Informing Families Guidelines presented to Obstetricians and Gynaecologists
25 September 2009
A presentation on the National Best Practice Guidelines for Informing Families of their Child's Disability was made to the Institute of Obstetricians and Gynaecologists on 25 September 2009. The research which took place on the Informing Families Project demonstrated that while there were 28 different disciplines identified by families as having provided their child's diagnosis, Obstetricians and Gynaecologists were the fifth most frequently reported. The presentation at the Institute Study Day was a welcome opportunity to present the research and recommendations of the best practice guidelines to an important group who are often the first professionals to communicate a diagnosis of a child's disability to the family.
For further information on the National Best Practice Guidelines for Informing Families of their Child's Disability or to order the DVD film 'Words You Never Forget' contact the Informing Families Project Coordinator: Alison Harnett
Informing Families Guidelines presented at joint Irish and Welsh Paediatric Meeting
15 May 2009
In keeping with the objective to disseminate the National Best Practice Guidelines for Informing Families of their Child's Disability to all relevant professional disciplines, a presentation on the research and consultation leading to the development of the Guidelines was made at the joint Faculty of Paediatrics and Welsh Paediatric Society Meeting at Fota Island in Cork, on Friday 15 May 09. The presentation included a short excerpt from the Words You Never Forget film produced to accompany the Guidelines and demonstrated key research findings. This meeting presented a particularly important opportunity to communicate about the Guidelines to a key audience, since Paediatricians were the discipline most frequently recorded by parents in the national research as having provided their child's diagnosis. There was significant interest in the Guidelines with Paediatricians and Paediatric Nurses from Wales and Ireland requesting copies of the Guidelines for use in their own practice and for training purposes.
For further information on the National Best Practice Guidelines for Informing Families of their Child's Disability or to order the DVD film 'Words You Never Forget' contact the Informing Families Project Coordinator: Alison Harnett
Train the Trainers Programme, Ballincollig
14 May 2009
As part of the Cork Implementation Project, through which the National Best Practice Guidelines for Informing Families of their Child's Disability are being implemented on a pilot basis in the Cork region, over 30 practitioners took part in a 'Train the Trainers' Workshop today, kindly hosted by the National Council of the Blind in Ireland Southern Services, Ballincollig, Cork. The aims of the workshop were to share information about best practice guidelines for informing families of their child's disability, and to provide information, support and materials to assist individuals in disseminating these guidelines to colleagues in their area or discipline.
Participants at the Train the Trainers Workshop in Ballincollig, Cork
The workshop included a viewing of 'Words You Never Forget'; a short film made to support the Informing Families Guidelines. Ms. Katherine O'Leary, Chair of the Informing Families Project in Cork and a parent of two children with disabilities; one with cerebral palsy and one with Down Syndrome; also shared her experiences of being given the news of a child's disability. The workshop was attended by practitioners from a wide range of disciplines from nursing, medical and allied health fields, and represented service settings in hospitals, community services and disability service providers. Feedback following the workshop was very positive, with participants particularly appreciative of the very personal and enlightening story shared by Ms. Katherine O'Leary. Following on from the workshop many participants are now planning presentations within their regions and disciplines to share the learning with colleagues.