Background to the Project

National Best Practice Guidelines for Informing Families of their Child's Disability

National Best Practice Guidelines for Informing Families of their Child’s Disability were developed by the National Federation of Voluntary Bodies and launched by Minister for Health and Children, Mary Harney TD in December 2007.These guidelines were based on a significant consultation and research process and were widely endorsed by professional bodies, parent and family organisations and educational institutions.

Click here to download the Guidelines

Roadmap for Implementation - Tools from The Cork Pilot Project

For the past two years the Informing Families Project has embraced the challenge to translate research into practice through a two year pilot implementation of the guidelines in the Cork Region, across hospital, community and voluntary disability services. The purpose of the pilot project was to gain knowledge to inform national roll-out. The pilot project has been successfully implemented and has been announced as one of the recipients of the Taoiseach’s Public Service Excellence Awards 2010.

Through the pilot project in the Cork region a range of valuable tools and materials have been developed which can be used around the country to support the implementation of best practice when informing and supporting families of children with disabilities.

Mr. John Moloney TD, Minister for Equality, Disability and Mental Health at the Department of Health and Children will launch these valuable tools for supporting best practice on Monday 28 June 2010 in University College Cork.

  • The Roadmap for Implementation – Informing Families of their Child’s Disability: Report of the Cork Implementation Project. Report of the Cork Implementation Project iconPDF
  • This website - information to support parents and professionals developed through the pilot project:
  • An e-Learning module based on evaluated training materials designed to support professionals who work with families of children with disabilities  eLearning Module


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  • Informing Families Project, National Federation of Voluntary Bodies,  Oranmore Business Park,  Oranmore, Galway
  • Phone: +353 (091) 792316
  • Fax: +353 (091) 792317
  • Email:
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