How this website works

The national research of the Informing Families Project revealed that over 60% of families did not receive written information when they were informed of their child's disability. 

Receiving difficult news can lead to a reaction of shock, and this can make it difficult to absorb information as it is being said. It is therefore very important that parents are given good quality written information that they can take home and absorb at their own pace.

This website was developed by the Informing Families Project to provide a source of good quality, appropriate, accurate and up to date information to parents at the time of diagnosis.

You can access the information directly as a parent, or you can access it as a professional and print the information for parents. 

We have worked with the HSE Social Inclusion Services to translate key documents for parents into various languages in order to cater for our linguistically and culturally diverse population. The information for parents is available in the following languages :

  • Gaeilge
  • Polish;
  • French;
  • Romanian;
  • Russian;
  • Lithuanian; and
  • Brazilian Portuguese

To access information in other languages, click on 'Information for Families' and view languages on the right hand side of the screen.

The information in this website will continue to develop over time and will continue to be reviewed to ensure that it remains up to date.



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  • Informing Families Project, National Federation of Voluntary Bodies,  Oranmore Business Park,  Oranmore, Galway
  • Phone: +353 (091) 792316
  • Fax: +353 (091) 792317
  • Email:
© 2024 Informing Families


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